Welcome. Who is here? What is this?

Here's news and info about three primary blood cancers, Lymphoma, Myeloma and Leukemia with a decided patient's perspective.  I hope this helps whether you're newly diagnosed or veteran survivor.  

       Is this You?              This is me.            We're Not Alone!    

 Is this You cancer patient    Click This is me    We are not alone, cancer warriors
Check my:Link to my blog


Twitter Feed

Click my Social Media, good stuff

YouTube -- https://www.youtube.com/user/JackWhelanAdvocate Twitter -- https://twitter.com/JackWhelan Google+ -- http://www.google.com/+JackWhelanAdvocate Facebook -- https://www.facebook.com/jack.whelan.98031

AACR Legislative: Write your Congressmen!


Professional Research Advocacy


American Association for Cancer Research


 American Society of Clinical Oncology 


Alliance for Clinical Research Excellence and Safety


National Organization for Rare Diseases 

Rare Disease Legislative Advocates  

Research Advocacy Network 

Alliance for Clinical Trials Oncology, Jack Whelan member

Patient Advocates In

Society for Participatory Medicine

Health Advocate Code of Conduct and Professional Standards

WEGO Health Speakers Bureau 

Connect With Me At ExpertFile


Music and audio player

As seen or quoted on these TV stations

ABC Good Morning America CBS Sunday Morning 2 News 3 News 8 10 News 12 News WIDK 10 28 News KCOY KCAU 9 KILL TV3 KLTV 7 KMPH 26 KOTA 28 News America my FOX LIVE HD 5 blip 28 News FOX-25 FOX-5 NEWS-25HD KYTX-19 NBC4i NBC29 ABC 33-40 WAND 17HD WBAY 2 WBOC 16 WECT 6 WHBQ 13 WITN WLBT 3 WMCT 5 WRCB 3 WSET 13 WTOC 11 WTVM 9 WVUE 8

I'm sorry, there's no easy way to tell you this.

I'm sorry, there’s no easy way to tell you this.                12 April 2016

I had heard similar words eight years ago when the doctor said, “I really don’t know much about your rare cancer.  It’s incurable and normally indolent” (slow growing).  Most of the published info back then indicated a five-year outlook.  Friends and family and many audiences have heard my “success story” beating that poor outlook because I bet on forward-looking science and chose to participate in clinical trials which played out relatively nicely, until now.

This time, it’s aggressive, metastatic, spread out from the prostate to bones and lymph nodes and with plenty of pain but the worst is the pain of uncertainty.   Until today, I’ve struggled with telling you about this.  The chatter is well underway because of incredible friends and family, advocates and life sciences professionals who care.

Here’s the skinny.  I was diagnosed with an aggressive metastatic prostate cancer.  Yes, it’s just not fair.  It’s complicated because I’m now battling two cancers, issues with toxicity and implications for the future treatment options because neither is curable.  And there’s that nagging question, how much time do I have?

I’ve learned so much about survival, how to more intelligently play this game to win or delay the inevitable, eagerly earning/accepting periods of “progression free survival” during which the promise of science and medicine can be fulfilled as they bring us new therapeutics to help “manage” cancer. 

Rather than settling for “standard of care” which might be good enough, I took my own advice finding the best research, care and compassionate teams available, an ongoing process, exploring what I hope will be the most effective and safest treatment options from Johns Hopkins University/Hospital in Baltimore and Dana Farber Cancer Institute in Boston.  I can't wait to tell you more about who, what, and why. 

One of the many unexpected benefits being involved in Advocacy is the number of advocates and life sciences pros that came forward and offered to help me.  The social media, messages, emails, cards and more are incredible.

I’ve been calling in favors big time and true generosity, care and compassion from around the world abounds.  Infusions of encouragement hope are so helpful.

Advocates are told “put on your own oxygen mask first.”  Heeding this warning, yesterday was my last day volunteering in Legislative Advocacy convincing Massachusetts lawmakers that “giving a state run panel authority to cap expensive drug prices” is not the solution.  

I’ve cancelled most of my Research Advocacy speaking engagements scheduled for the next few months again following my own “big mouth recommendations” to Advocates and Survivors to slow down and take time to get better.

What will I do with all that new free time in the infusion chair?  More research, share more patient’s perspective with policymakers and lawmakers, help new support group initiatives and most important focus on renewed friendships more intense love for my family and friends and offer a very BIG THANK YOU.

One of my three fabulous daughters (don’t get me started) Patti, has written a loving, engaging and gripping blog about what she and so many others are feeling.  It gives a very personal insight into a cancer diagnosis and why this Dad and GrandDad is so proud of her and my family.  

For more info, please see https://pippilaroo.wordpress.com/2016/03/15/team-whelan-fights-again/

I wanted to make this message as personal to you as possible;  I hope you don't mind receiving this by way of social media.

Jack Whelan




From Mashadot | On December 12, 2017 @04:29 pm
This message is posted here using XRumer + XEvil 4.0 XEvil 4.0 is a revolutionary application that can bypass any anti-botnet captcha. Captcha Solution Google (ReCaptcha-1, ReCaptcha-2), Facebook, BING, Hotmail, Yahoo, Yandex, VKontakte, Captcha Com - and over 8.4 million other types! You read this - it means it works! ;) Details on the official website of XEvil.Net, there is a free demo version. Check YouTube video "XEvil ReCaptcha2"
From JuliezRoT | On November 26, 2017 @09:13 pm
This message is posted here using XRumer + XEvil 4.0 XEvil 4.0 is a revolutionary application that can bypass almost any anti-botnet protection. Captcha Recognition Google (ReCaptcha-1, ReCaptcha-2), Facebook, Yandex, VKontakte, Captcha Com and over 8.4 million other types! You read this - it means it works! ;) Details on the official website of XEvil.Net, there is a free demo version.
From Agennut | On February 02, 2017 @09:56 am
what are the best paper writing services https://expertwriting.org/?cid=2190
From tamrahi18 | On February 02, 2017 @04:04 am
Started new cobweb project http://engines.telrock.org/?post-tamara she joins them porn drunken moms tube porn free porn movies for palm pre 3d porn teen fantacy oldgranny porn
From PedroApeby | On February 01, 2017 @01:52 am
Предлагаем полностью рабочий софт/We offer cracked PETROLEUM EXPRERTS (PETEX) IPM 10: GAP, PROSPER, MBAL, PVTP, REVEAL, RESOLVE ALL MODULES (CRACK - Dongle emulator/Custom license/Patch). Полная поддержка наших решений. Тестирование перед оплатой/Full support for our solutions. Testing before payment. Контакты/Contacts: nodongle24 /@/ gmail.com (remove spaces and /) Dinkey Dongle Emulator, эмулятор, Dinkey Pro Dongle Emulator, Wi3p Dongle Emulator, Spark Keypro Dongle Emulator, ROCKEY EPass Dongle Emulator, купить, Smartkey Eutron Usbdl Dongle Emulator, Enky Sl Hid Dongle Emulator, Guardant Fidus Dongle Emulator, ROCKEY EPass Dongle Emulator, Tinykey Dongle Emulator, Wibu Wibukey Dongle Emulator, Smartlock Dongle Emulator, Guardant Stealth Dongle Emulator.
From snanteeUnlaky | On January 31, 2017 @12:55 pm
[size=16 - Таким образом, абонентское обслуживание персональных компьютеров в Казане сегодня становится не только актуальной, но и весьма популярной услугой.[/size - Учет оборудования и лицензий. Вложенные в ИТ деньги будут работать на вашу компанию, а не пылиться на складе или исчезать бесследно. https://1cbit.net/1c-buhgalteriya/1s-buhgalteriya-y-v-krasnoyarske.php - 1с бухгалтерия y в красноярске Наличием более 500 сертификатов от производителей оборудования и программного обеспечения. https://1cbit.net/1c-buhgalteriya/1s-buhgalteriya-bazy-dannyh.php - 1с бухгалтерия базы данных Заключая договор с нами, вы убережете себя от непредвиденных расходов; Экономия ощутима.Это профессионально. Наши специалисты постоянно обучаются и повышают свою квалификацию, и имеют огромный практический опыт, в решений самых разных задач. https://1cbit.net/1c-buhgalteriya/1s-buhgalteriya-dlya-chaynikov-kniga.php - 1с бухгалтерия для чайников книга обеспечение информационной безопасности, гарантия сохранности и доступности данных; избавление сотрудников от сбоев в IT-инфраструктуре; своевременное предоставление бизнес-пользователям информационных систем, требующихся им по мере развития предприятия. Абонентское обслуживание компьютеров от компании PointComp — это: 1сервисное обслуживание компьютеров 24/7; 2работа по международным стандартам IT сервиса: ITIL, ISO20000; 3устранение не только поломок, но и их причин;4специальные цены на компьютерную технику. https://1cbit.net/1c-buhgalteriya/h-qo-1s-buhgalteriya-502.php - h qо 1с бухгалтерия 502 Абонентское обслуживание компьютеров, IT-аутсорсинг для Вас Прогресс не стоит на одном месте и сегодня трудно представить успешное предприятие без компьютерной техники. Своевременное и грамотное обслуживание компьютеров – залог успешного функционирования фирмы. Более того - обслуживание компьютеров играет огромную роль вне зависимости от того, что представляет собой фирма – Интернет-магазин, или мебельная фабрика. https://1cbit.net/1c-buhgalteriya/hasp-emu-lator-1s-buhgalteriya.php - hasp emu lator 1с бухгалтерия настройка компьютерной сети; консультации и обеспечение и информационной безопасности; антивирусное обслуживание и помощь. https://1cbit.net/1c-buhgalteriya/its-1s-uchet-v-buhgalterii.php - итс 1с учет в бухгалтерии Важно понять, что вкладывают организации в это понятие? Чем измеряют? И поэтому мы приняли решение ежедневно измерять качество наших услуг. На сегодняшний день мы измеряем до 20 показателей нашей работы
From maureenuz4 | On January 27, 2017 @02:30 pm
Fresh gay images http://yaoi.erolove.in/?pg_grady gay life gay new york famous gay people gay night clubs married gay men
From bonitaah11 | On January 27, 2017 @09:40 am
Started up to date spider's web project http://blondesex.twiclub.in/?stage.juliette erotic trailers most erotic scenes erotic grpahics erotic paperbacks erotic modeling
From Thomaseaser | On January 25, 2017 @06:16 am
Подскажите затягивающую онлайн игру, чтоб зависнуть в ней на пару лет и не устать от неё?
From ktokkisa | On January 18, 2017 @01:28 am
Всех с прошедшими праздниками! Заходите в чат без регистрации http://ktoki.ru/noreg.html пообщаемся.
From Karenzed | On January 17, 2017 @08:12 am
Привет. Приглашаю Вас на Правильный L2 сервер Сервер понравится тем кто любит долгую игру с замыслом на постепенное завоевание. Вероятно не понравится предпочитающим ворваться и всех победить. Скользящим мимо любителям побегать по серверам неделькам, ловить нечего, т.к. старички их моментально накажут :) Адрес http://l2immortal.com
From Tyroneasymn | On January 14, 2017 @02:40 am
origami turtle twitter.com/origamilesson
From Rogerpaw | On January 11, 2017 @11:31 pm
Привет. Приглашаю Вас на Ровный High Five сервак Сервак понравится тем кто уважает долгую стратегию с расчетом на постепенное завоевание. Вероятно не подойдет предпочитающим налететь и всех нагнуть. Скользящим мимо любителям попрыгать по сервам неделькам, ловить мало, т.к. старики их быстро уделают :) Адрес http://l2immortal.com
From Kym Martin  | On April 14, 2016 @11:08 pm
Love you, Jack! Thank you for continuing to share your journey and inspiring so many of us along the way. You're an incredible mentor and I'm beyond grateful for our initial meeting around this time last year at Health Refactored in Boston. The impacts you've had - and will continue to have - in the hearts of those who know you are immense blessings!
From Danny van Leeuwen | On April 14, 2016 @04:59 am
Love ya Jack
From Susan Weiland | On April 13, 2016 @01:35 pm
Jack my heart goes out to you and your family! You are truly one special guy and ALL of you are in my prayers daily! Take care of yourself!! Susan
From Anne Llewellyn | On April 12, 2016 @09:34 pm
So sorry Jack to hear this. Take time to be with your family, rest and take care of yourself. I hope social media will continue to be a comfort to you as it will show the gratitude for your advocacy work and the friendships that you have built. Although we have not met, I feel like I know you....You are in my prayers and thoughts. I got this link from a person I met on Facebook. She put together this video to show the resilience of cancer survivors. What hit me as I watched it was how many people had reoccurrences and how brave people are. Take some time to sit back and watch it. http://missionpositivefilmsblog.com/mpf-the-celebrate-life-events-fighter-and-survivor-slide-show/

Leave a comment