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Here's news and info about three primary blood cancers, Lymphoma, Myeloma and Leukemia with a decided patient's perspective.  I hope this helps whether you're newly diagnosed or veteran survivor.  

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Recent Healthcare Conferences, videos on Youtube

Pfizer is keenly interested in the patient's voice as an integral part of the company's drug development program.  Pfizer's Value of Medicine Ad campaign features an interview with Jack where he shares some of his personal experiences.   

Pfizer Value of Medicines

Pfizer Value of Medicines, Jack Whelan's Story

Pfizer's "Value of Medicines" papers outline the social health and economic value of a variety of classes of treatments.  The supporting 90 second viodeo illustrates the positive impact that medicines have had on a patient, Jack Whelan.  Jack faced a life-threatening health condition.  His story provides insights into the important role that medicines have played in his journey toward improved health.

To read Pfizer's "Value of Medicines" papers visit:

http://www.pfizer.com/news/press_kits/value_of_medicines

 

At eyeforpharma's Patient-Centered Clinical Trials 2014 Conference in London, Jack speaks on how biotech and pharmaceutical companies can become more patient-centric.     

eyeforpharma Jack Whelan

eyeforpharma interview with Jack Whelan

Jack Whelan, ePatient and clinical trial proponent on how pharma needs to push the regulatory boundaries to fully engage with the patient and how a strict regulatory environment is hampering meaningful dialogue between pharma and the patient - See more at:

http://social.eyeforpharma.com/patients/video-cancer-survivor-jack-whelan-speaks-how-pharma-can-become-more-patient-centric

 

 

At Genentech's Give Back Week celebration at AT&T Park, Jack shared the stage with three magnificent cancer survivors Margie, Christina and Ali and real rock stars: Usher, Colbie Caillat and Foo Fighters. This video a short story of hope and survival was a key part of the presentation.     

Genentech gives back Jack Whelan

Genentech Gives Back Survivor Stories

Jack was featured at Genentech's 2014 Give Back week, now in its seventh year, a company-wide initiative that raises money for charity and encourages employees to volunteer with local and national non-profits. It gives employees a chance to reconnect with colleagues in the spirit of giving and helps the company collectively make real and positive changes in local communities.

 

 

 

Short Thank You video Dana-Farber and Brigham & Women's Cancer Center TV Commercial on ABC-TV Network and Good Morning America  

New Dana Farber Yawkey Building

Dana-Farber Brigham & Women's Cancer Center -Click here to see Excellence at work!

 

 

 

 

 

International Waldenstrom's Macroglobulinemia Foundation (IWMF) two videos, Jack is the keynote dinner speaker:

International Waldenstrom's Macroglobulinemia Foundation logoIWMF Patient Educational Forum, San Diego, CA  May 2013 Day 1 candid photos, Cocktail Hour, President's Reception  

IWMF Patient Educational Forum, San Diego, CA  May 2013 2 of 2 Welcome Dinner, Jack is keynote speaker.  Day 2 Plenary, Presentations from and Tribute to leading hematologist/oncologists, candid photos.

 

  

 Drug Information Association (DIA)

Drug Information Association logoDIA 2013 Patient Advocate Fellowship Program 

 

 

 

 

 

 

American Society of Clinical Oncology (ASCO) three videos:

ASCO logoASCO Research Advocate Network Focus on Research Scholar Program 2013 Posters Exhibits in HD

ASCO Research Advocate Institute Research Scholar Program 2013 -Interviews with MD's, President's Reception at Field Museum

ASCO Research Advocate Institute Focus on Research Scholar 2013 Dinner 

 

American Association of Cancer Research (AACR) two videos:

AACR logoAACR 2013 Scientist-Survivors at Rally for Medical Research

AACR 2013 Scientist Survivor Program SSP Closing Ceremony

 

 

 

 

 

Praise for Dana Farber Cancer Institute

Tom (TC) Caron NESN TV produces TV Commercial

 

Click for the TV Commercial produced by NESN's popular sportscaster Tom Caron who visited with Jack and his family.  This was a fun video interview with Jack where he got to showcase his family, twin grandchildren and praise the team at Dana Farber Cancer Institute.  

                                                                               

 

 

Participate in Clinical Trials

Being pursued for a bone marrow biopsy

This is silly but one particular blood cancer charity/ agency asked me to post a video making an appeal to an audience to participate in something, not fundraising but something to encourage members of the audience to "sign up".   Just joking I offered, "how about something easy - like a bone marrow biopsy?".   So, here it is.  Actually, it's a serious appeal to get audience members to enroll in a bone marrow Tissue Bank study.  Similar studies have produced incredible research and actionable results for patients managing Multiple Myeloma. I ask audience members discuss their situation with at least two very knowledgeable physicians, Dr. Guy Sherwood and Dr. Robert (Bob) Kyle for more information. 

 

 

Veteran Patients Panel

Click for video: Patient? Veterans or Veteran Patients?OK Jack, have you ever moderated a panel?  Well, at that same event I was the "moderator" of a Patient Panel of Treatment Veterans.  These are veteran patients that have had a variety of treatment over the years.  

I tell my "recently diagnosed" story about my first encounter with this particular Ed Forum tract years ago when I believed the discussion would be centered around military veterans possibly U.S. Navy veterans like me where there is some positive correlation to the blood cancer population. Needless to say, we were not discussing military veterans as I expected, a little humorous.  

 

 

Videos of a variety of Jack's presentations, speeches, and TV and Radio shows will be posted here,

Please come back soon.